Let me tell you a story (warning...it is long – so get a mug of good coffee first):
So….I know a lot of you know about my youngest son, Emmett, who was born with a very rare condition called, Primary Ciliary Dyskinesia. We didn’t even know he had anything wrong with him until he was struggling to breathe about 10 hours after he was born and they detected his heart was on the wrong side of his body. Anyway, after we recovered from freak-out parent mode, we listened to the doctors tell us that he had to be transferred to St. John’s hospital in Springfield to the NICU. He was there for 19 days. In those 19 days, there “happened” to be a nurse whose Grandbaby had PCD and that family (from Colorado) just “happened” to be in Springfield for the holidays when we were there and were able to meet with us.
After he was diagnosed with PCD and we were grappling with what that would look like in our family, we just “happened” to be referred to a doctor at Children’s Hospital who was fantastic and filled us in on everything we needed to know. Then when we found out that Emmett’s specific genetic strain of PCD is one of THREE CASES IN THE WHOLE WORLD…..we found out that our great doctor just “happened” to have that strain as his research specialty!!
As the bills for the NICU and lots of tests and doctor appointments came in…we just “happened” to have an AMAZING church family and school family and community surround us and provide a benefit that raised $11,000 and STILL to this day is paying off our medical bills for Emmett. And we have yet to put a medical bill on payment plans.
Then about a year ago, we started trying to get the therapy vest for Emmett. We had been doing therapy on him…by hand…two times a day for twenty minutes a day each….which worked out fine when he was tiny…but now he was getting to be a toddler. And both Spencer and I work; therefore, he is with a lot of different people throughout a week and there was always concern about the consistency of his daily therapy. Insurance kept denying and denying and denying…up until the final 6-page denial document…detailing why the vest is just not “medically necessary.” Then…we “happened” to get a phone call a couple weeks ago…(that I didn’t even understand at first)…that said…THE VEST COMPANY, RESPIRTEC, CEO HAD AGREED TO JUST GIVE US THE VEST. Now…please keep in mind...this is a $16,000 piece of equipment that will grow with him for life.
I wanted to share this journey to encourage you all…that PRAYER WORKS…and nothing really JUST “happened”! And it isn’t always the way we think it is going to work; heaven knows, we thought we would much rather have left Quincy on Dec. 23rd with a healthy baby instead of this journey…but then we would have missed out on knowing God’s provision. We serve a BIG God that cares for us and cares for our individual needs. I want to thank you all for your prayers and support in word, meals, financial, etc. Spencer and I are so blessed to be living in a community…in a church family…in a Pikeland family…in a Spangler/Scranton/Boren/Parks family that loves us and has been willing to actively BE God’s hands and feet.
Phil. 4:6(MSG) -
“Don’t fret or worry. Instead of worrying, pray. Let petitions and praises shape your worries into prayers, letting God know your concerns. Before you know it, a sense of God’s wholeness, everything coming together for good, will come and settle you down. It’s wonderful what happens when Christ displaces worry at the center of your life.”
In Christian Love,